National & Local Resources
ALS Association (ALSA)
Established in 1985, the ALS Association is the only non-profit organization fighting Lou Gehrig’s Disease on every front.
https://www.als.org
Massachusetts Chapter
https://www.als.org/massachusetts
ALS Care Project
The ALS Care Project began as an endeavor by Pamela A. Cazzolli, RN to improve the care of people with ALS since 1984 through research and education with an emphasis on living and breathing easier.
http://www.alscareproject.org
ALS ONE
The top leaders, researchers, doctors and caretakers in ALS within Massachusetts, have joined forces to bring the strengths of their venerable institutions to an ambitious plan: to bring a treatment to persons with ALS within the next four years.
http://www.alsone.org
ALS Therapy Development Institute (TDI)
The #1 nonprofit biotechnology organization dedicated to developing effective treatments for ALS.
http://www.als.net
Angel Fund
The Angel Fund is a non-profit organization dedicated to supporting ALS investigations at the Cecil B. Day Laboratory for Neuromuscular Research, internationally recognized for its ground-breaking work in the fight against this devastating illness.
http://www.theangelfund.org
Augie’s Quest
Under the banner MDA’s Augie’s Quest, Nieto and his wife, Lynne, are supporting MDA’s aggressive fundraising and research effort aimed at finding more effective treatments and, ultimately, a cure for ALS.
http://augiesquest.org
Beth Israel Deaconess Medical Center
Blazeman Foundation
The mission of the Blazeman Foundation for ALS is to raise awareness about ALS and to raise necessary funds to be directed into cutting-edge scientific research to find treatments and an eventual cure for ALS.
http://waronals.org
Compassionate Care ALS (CCALS)
CCALS is a nonprofit organization that offers individualized support to those currently living with ALS, their families and caregivers.
http://www.ccals.org
Curt & Shonda Schilling ALS Clinic at the Lahey Clinic Medical Center
The purpose of the Curt & Shonda Schilling ALS Clinic is to enable patients to maintain a maximum level of neurological functioning in a supportive and understanding environment.
https://www.lahey.org/lhmc/department/neurology/als-center
I Am ALS
Founded by ALS patient Brian Wallach and his wife, Sandra Abrevaya, I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policy-makers and offering vital resources for people impacted by ALS.
https://iamals.org
Muscular Dystrophy Association ALS Division (MDA-ALS)
MDA takes a big picture perspective on neuromuscular diseases, including ALS, that limit muscle strength and mobility, so we can reach across diseases to find effective treatments and cures.
https://www.mda.org/disease/amyotrophic-lateral-sclerosis
MGH Sean M. Healey & AMG Center for ALS
At the Healey Center for ALS, we are on a quest to discover life-saving therapies for approximately 500,000 people worldwide who are affected by amyotrophic lateral sclerosis (ALS).
https://www.massgeneral.org/neurology/als
National ALS Registry
The Center for Disease Control’s (CDC) maintains the growing registry of ALS patients to help improve understanding of who gets ALS and of factors that affect disease.
http://wwwn.cdc.gov/als
Northeast ALS Consortium (NEALS)
The mission is to translate scientific advances into new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as rapidly as possible.
https://neals.org
PatientsLikeMe (PLM)
PatientsLikeMe is committed to putting patients first by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you, and organizations that focus on your condition.
http://www.patientslikeme.com
Project A.L.S.
The overall strategy is to raise significant funds and direct the majority of the funds raised to the collaborative efforts of world leading scientists.
http://www.projectals.org
Team Gleason
There is NO CURE for ALS. Until there is a cure, there is Team Gleason. Since 2011, Team Gleason has provided over $40 million in adventure, technology, equipment, and care services to people living with Amyotrophic Lateral Sclerosis (ALS) and countless others through advocacy, support and ultimately bringing an end to the disease.
https://teamgleason.org
University of Massachusetts Medical School (UMMS)
The University of Massachusetts Medical School's Neurology department is the largest training, research and clinical neurology facility in central New England.
https://www.umassmed.edu/neurology/neurology-specialty-centers/als-clinic
Established in 1985, the ALS Association is the only non-profit organization fighting Lou Gehrig’s Disease on every front.
https://www.als.org
Massachusetts Chapter
https://www.als.org/massachusetts
ALS Care Project
The ALS Care Project began as an endeavor by Pamela A. Cazzolli, RN to improve the care of people with ALS since 1984 through research and education with an emphasis on living and breathing easier.
http://www.alscareproject.org
ALS ONE
The top leaders, researchers, doctors and caretakers in ALS within Massachusetts, have joined forces to bring the strengths of their venerable institutions to an ambitious plan: to bring a treatment to persons with ALS within the next four years.
http://www.alsone.org
ALS Therapy Development Institute (TDI)
The #1 nonprofit biotechnology organization dedicated to developing effective treatments for ALS.
http://www.als.net
Angel Fund
The Angel Fund is a non-profit organization dedicated to supporting ALS investigations at the Cecil B. Day Laboratory for Neuromuscular Research, internationally recognized for its ground-breaking work in the fight against this devastating illness.
http://www.theangelfund.org
Augie’s Quest
Under the banner MDA’s Augie’s Quest, Nieto and his wife, Lynne, are supporting MDA’s aggressive fundraising and research effort aimed at finding more effective treatments and, ultimately, a cure for ALS.
http://augiesquest.org
Beth Israel Deaconess Medical Center
Blazeman Foundation
The mission of the Blazeman Foundation for ALS is to raise awareness about ALS and to raise necessary funds to be directed into cutting-edge scientific research to find treatments and an eventual cure for ALS.
http://waronals.org
Compassionate Care ALS (CCALS)
CCALS is a nonprofit organization that offers individualized support to those currently living with ALS, their families and caregivers.
http://www.ccals.org
Curt & Shonda Schilling ALS Clinic at the Lahey Clinic Medical Center
The purpose of the Curt & Shonda Schilling ALS Clinic is to enable patients to maintain a maximum level of neurological functioning in a supportive and understanding environment.
https://www.lahey.org/lhmc/department/neurology/als-center
I Am ALS
Founded by ALS patient Brian Wallach and his wife, Sandra Abrevaya, I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policy-makers and offering vital resources for people impacted by ALS.
https://iamals.org
Muscular Dystrophy Association ALS Division (MDA-ALS)
MDA takes a big picture perspective on neuromuscular diseases, including ALS, that limit muscle strength and mobility, so we can reach across diseases to find effective treatments and cures.
https://www.mda.org/disease/amyotrophic-lateral-sclerosis
MGH Sean M. Healey & AMG Center for ALS
At the Healey Center for ALS, we are on a quest to discover life-saving therapies for approximately 500,000 people worldwide who are affected by amyotrophic lateral sclerosis (ALS).
https://www.massgeneral.org/neurology/als
National ALS Registry
The Center for Disease Control’s (CDC) maintains the growing registry of ALS patients to help improve understanding of who gets ALS and of factors that affect disease.
http://wwwn.cdc.gov/als
Northeast ALS Consortium (NEALS)
The mission is to translate scientific advances into new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as rapidly as possible.
https://neals.org
PatientsLikeMe (PLM)
PatientsLikeMe is committed to putting patients first by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you, and organizations that focus on your condition.
http://www.patientslikeme.com
Project A.L.S.
The overall strategy is to raise significant funds and direct the majority of the funds raised to the collaborative efforts of world leading scientists.
http://www.projectals.org
Team Gleason
There is NO CURE for ALS. Until there is a cure, there is Team Gleason. Since 2011, Team Gleason has provided over $40 million in adventure, technology, equipment, and care services to people living with Amyotrophic Lateral Sclerosis (ALS) and countless others through advocacy, support and ultimately bringing an end to the disease.
https://teamgleason.org
University of Massachusetts Medical School (UMMS)
The University of Massachusetts Medical School's Neurology department is the largest training, research and clinical neurology facility in central New England.
https://www.umassmed.edu/neurology/neurology-specialty-centers/als-clinic
